Mood:
Topic: Huntington's Disease

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Yesterday a new home support worker came over and
helped me make dinner for Trevor. That was yummy stuff. We
made a stir fry. I was so sick the past two days. Really tired
too. Made everything worse. Had a hard time dressing. We
were talking I totally brain fogged out. I was doing aerobics.
Had a horrible toe seizure. They kill me. Today I feel it will be
a relatively HD free day. I have Phsyio today. Every time I go to
see him I am relatively healthy. Imagine that. Yesterday my
little Lucky was having some nightmares. Poor little guy. He
was wimpering and scared while sleeping.Let’s live life
together. This only shot at life we get. Let’s enjoy it. Let’s live
like we have nothing else. Learn to love your life the way it is.
Live like you are dying. Live and love your life until the cure
comes. Do not give up on yourselves. Do not give up in life. We
have to fight HD. Get control. This is our life HD. Give our
happiness back. Give our hope back. Give our future back too.
Give it all back. We deserve to have a great life. Do not let HD
take that away.Fight with all fo the strength you can muster.
This our happiness HD is trying to take awy. It is these basic
that we are fight so hard for.
Yesterday we went on a hike in the wildlife center here.
Trevor and I took Lucky out there. He loved it. He was so
happy. It was a nice hike. There were lots of animals all over
the place. I saw my first turtles. I love turtles. Last time I went
I missed them. They were so cute. I am planning to climb a
mountain this summer. I am blogging, I am trying to eat. I feel
like I am going to throw up. I am so glad for the ensure. I have
been spilling like crazy. Trevor’s Mom is still going against
us . They are afraid that I well get sick and it would cause
him to get sicker. We are going to get cured soon. I will never
be that sick. We do not understand why. Since I am off my
Serquil I am back to my old self. Have not got angry and
freaked out. The hallucinations are down too. I have not
gotten much now. Shirley will be here in half an hour. She is
the perfect Nurse for me. We are going to live. My Mom gave
us all of the signs. I think this dream was a reminder.
Remember that. We are so close to getting a cure. This is
what we need. A reminder. Be strong. Live. It will all be worth
it. We can have real tangible breakthroughs. They are
substantial. None of us are going to die anymore. We are all
going tom live together. Cured wholly. Never lose site of the
whole picture. We will live HD free soon.
My home support worker is amazing. She dropped by in the
morning to make sure I took my meds. We did the dishes. She
is really nice. They are givng me lots of time to work on here.
They came at 10:30 in the morning. Then they came back at 4
in the afternoon. We took Lucky for a walk. His leash broke on
that walk. Right where there was a mean dog there. She tried
to attack him. That was scary. We went to her house to get a
harness. Scary. I had that horrible foot spasm last night.
They kill me. I have never been in more pain in my life. I have
been falling a lot lately. I decided to put up all of the articles
that involve my family. I have also been struggle with a
depression for a week now. Yesterday I was brought to tears
I was so upset. We think it is because I know I am that sick
now I am having home supports. Trevor said that I am not that
sick yet. I am feeling better. Whenever I feel this way I listen
to happy music. Watch something on TV. We should never
feed our depression. If we do, we end up nowhere good. Fight
it away. With laughter and smiles. We cannot let it rule our
life. It is natural with HD to feel this way. It is how it works. It
is how we fight it that makes the difference. We deserve to
be happy. We have to fight for it. We have to wake and fight an
unimaginable fight. Every day we wake same thing. Let’s
show our strength. We can fight you HD. We have to fight for
every smile and every laugh. Once we get there it is always
worth it.
I made an Articles Page. It has two articles involving my
family. Changed My Photos Pages.
Last night I had another HD prophetic dream, I had a dream
where we all got cured again. It is going to happen soon... So
soon. We can live again. It will not be long and all of my
dreams come true. Never lose hope. We went to Nelson
yesterday. Took Nefertiti and Elissya with us. We took a ride
on the ferry. It was so fun. Went shopping. I love Nelson it is
beauftul. We took little Lucky with us. The poor little guy got
sick and puked all over me. We know we have a baby now.
Trevor and I would love to live there. Today is my first day of
home support. They will come in an hour. Tell me about my
meds. I am not scared anymore. Excited. I am not going to
stop my blog because I get sicker. I will not give up on you. I
will not give up on your daily hope. I will literally be
incapatceted and still blogging. Every life I save from
desperation and fear keeps me going. We need hope. We all
do. Especially when it comes to HD. We will get cured though.
Both of my dreams say so. No need to be afraid anymore. I
made that Mother’s Day Graphic of my Mom. I loved her very
much. She is all I think of for this holiday. I would always
bring my Mom flowers. I visited her almost every noon hour.
When she was in the hospital. I made her little games and
word puzzles. I was afraid of her getting bored. I was happy
when I was 16 and got work experience. Worked at the
hospital. I looked after her. Used to call me her salvation. I
found that out at her funeral. I had also played a huge part in
raising my brothers. Scotto is a mini me. Gary was more
rebellious. Whenever I go to see her gravesite that is how I
know we are going to get cured. She told me in the first
dream I had. That I was going to sick and I will be cured
quickly. Now the other one. Our path is set. We can live again.
Plan your future.

Today I spent the day with my best friend Elyssa. Trevor has a new
job. He works at home builders. They have benefits after 3 months
which is good. Today I am having serve brain fog. The past two
nights I was scared. I have been petrified. Very scared. Today I
have been feeling less HD symptoms. Every day I still do aerobics.
Keep this up. We need to build neurons. Keep running. Keep being
active. The longer we are active the better we are. Everyday I go out
with Lucky and Elyssa everyday with Lucky. He meets lots of dog
friends on his walk. Our little boy. When he was at the Hair Salon.
She said he was a smart dog. All of the other dogs from our breeder
where snippy. He was the best of that breeder. We were Lucky. Keep
up your life. Do not surrender your life. Live your life. Keep on living.
Soon as we give up. HD will claim us. It is so important to fight. We
are fighting life and death here. We are. We could lose our life. If
we do not fight. Use that strength. Fight for your right to be happy. To
be hopeful.
I met with my home support head Nurse today. She seems
nice. I told them that I need time to run this site. I will get it. I
mainly need the med reminder. I usually don’t remember. I
am kind of still a bit scared. I usually am with change. I am
sure I will enjoy the Nurse. Last night I made supper. Yummy.
They start Monday. I accepted I am sick. We will get sicker.
That should not change how we view life. Life is great. Our
future is great. Everything can only get up from here. We can
have real hope know. Real cures. Real breakthroughs. I
believe. There is too much hope for us. Let’s learn to love our
life, ourselves again. Believe in our future. We can get there
easy. It is not far. We can hold on. We can make it in time. We
can learn to live again. A hundred percent healthy. Right now
we have to deal with HD. Until the cure comes. Hold on. We
don’t have long until we are cured. Fight HD with everything
you have. It will be worth it. We can be there. We can live.
Tomorrow we get everything sorted out with home support.
On Monday it starts. Today I am really sick. I am so sick. Last
night there was twitching in my leg for a long time. I have bad
chorea. I love spring. I was taking Lucky for a walk. There was
a little kitty in the road. A huge truck was coming. I ran and
saved that cats life. He might have gone and got ran over.
Poor kitty. I chase him off the road. We need to take
everything with passion for life. Passion to fight. Just not
live. Love your life. Live your life. This is all we have. We need
to have unwavering hope for the future. We will get there. We
can live again a hundred percent. Motivate yourself to
greatness in your eyes. We can do anything we want to. I
never let HD get in the way. Fight HD. Loosen its grip on you.
Loosen it. Breathe again. Live again. Just breathe. Your life is
in your hands. Do what you wish. Live your life now. You have
it back.
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