Heather Bloggie

We are all free and grateful

Fri, 9 May 2008 00:01:40 -0500

Thu, 8 May 2008 11:40:53 -0500

Yesterday a new home support worker came over and

helped me make dinner for Trevor. That was yummy stuff. We

made a stir fry. I was so sick the past two days. Really tired

too. Made everything worse. Had a hard time dressing. We

were talking I totally brain fogged out. I was doing aerobics.

Had a horrible toe seizure. They kill me. Today I feel it will be

a relatively HD free day. I have Phsyio today. Every time I go to

see him I am relatively healthy. Imagine that. Yesterday my

little Lucky was having some nightmares. Poor little guy. He

was wimpering and scared while sleeping.Let’s live life

together. This only shot at life we get. Let’s enjoy it. Let’s live

like we have nothing else. Learn to love your life the way it is.

Live like you are dying. Live and love your life until the cure

comes. Do not give up on yourselves. Do not give up in life. We

have to fight HD. Get control. This is our life HD. Give our

happiness back. Give our hope back. Give our future back too.

Give it all back. We deserve to have a great life. Do not let HD

take that away.Fight with all fo the strength you can muster.

This our happiness HD is trying to take awy. It is these basic

that we are fight so hard for.

Cured

Wed, 7 May 2008 13:24:38 -0500

Yesterday we went on a hike in the wildlife center here.

Trevor and I took Lucky out there. He loved it. He was so

happy. It was a nice hike. There were lots of animals all over

the place. I saw my first turtles. I love turtles. Last time I went

I missed them. They were so cute. I am planning to climb a

mountain this summer. I am blogging, I am trying to eat. I feel

like I am going to throw up. I am so glad for the ensure. I have

been spilling like crazy. Trevor’s Mom is still going against

us . They are afraid that I well get sick and it would cause

him to get sicker. We are going to get cured soon. I will never

be that sick. We do not understand why. Since I am off my

Serquil I am back to my old self. Have not got angry and

freaked out. The hallucinations are down too. I have not

gotten much now. Shirley will be here in half an hour. She is

the perfect Nurse for me. We are going to live. My Mom gave

us all of the signs. I think this dream was a reminder.

Remember that. We are so close to getting a cure. This is

what we need. A reminder. Be strong. Live. It will all be worth

it. We can have real tangible breakthroughs. They are

substantial. None of us are going to die anymore. We are all

going tom live together. Cured wholly. Never lose site of the

whole picture. We will live HD free soon.

Home Support

Tue, 6 May 2008 12:14:01 -0500

My home support worker is amazing. She dropped by in the

morning to make sure I took my meds. We did the dishes. She

is really nice. They are givng me lots of time to work on here.

They came at 10:30 in the morning. Then they came back at 4

in the afternoon. We took Lucky for a walk. His leash broke on

that walk. Right where there was a mean dog there. She tried

to attack him. That was scary. We went to her house to get a

harness. Scary. I had that horrible foot spasm last night.

They kill me. I have never been in more pain in my life. I have

been falling a lot lately. I decided to put up all of the articles

that involve my family. I have also been struggle with a

depression for a week now. Yesterday I was brought to tears

I was so upset. We think it is because I know I am that sick

now I am having home supports. Trevor said that I am not that

sick yet. I am feeling better. Whenever I feel this way I listen

to happy music. Watch something on TV. We should never

feed our depression. If we do, we end up nowhere good. Fight

it away. With laughter and smiles. We cannot let it rule our

life. It is natural with HD to feel this way. It is how it works. It

is how we fight it that makes the difference. We deserve to

be happy. We have to fight for it. We have to wake and fight an

unimaginable fight. Every day we wake same thing. Let’s

show our strength. We can fight you HD. We have to fight for

every smile and every laugh. Once we get there it is always

worth it.

Articles

Mon, 5 May 2008 22:31:33 -0500

I made an Articles Page. It has two articles involving my

family. Changed My Photos Pages.

We are going to get cured

Mon, 5 May 2008 11:55:50 -0500

Last night I had another HD prophetic dream, I had a dream

where we all got cured again. It is going to happen soon... So

soon. We can live again. It will not be long and all of my

dreams come true. Never lose hope. We went to Nelson

yesterday. Took Nefertiti and Elissya with us. We took a ride

on the ferry. It was so fun. Went shopping. I love Nelson it is

beauftul. We took little Lucky with us. The poor little guy got

sick and puked all over me. We know we have a baby now.

Trevor and I would love to live there. Today is my first day of

home support. They will come in an hour. Tell me about my

meds. I am not scared anymore. Excited. I am not going to

stop my blog because I get sicker. I will not give up on you. I

will not give up on your daily hope. I will literally be

incapatceted and still blogging. Every life I save from

desperation and fear keeps me going. We need hope. We all

do. Especially when it comes to HD. We will get cured though.

Both of my dreams say so. No need to be afraid anymore. I

made that Mother’s Day Graphic of my Mom. I loved her very

much. She is all I think of for this holiday. I would always

bring my Mom flowers. I visited her almost every noon hour.

When she was in the hospital. I made her little games and

word puzzles. I was afraid of her getting bored. I was happy

when I was 16 and got work experience. Worked at the

hospital. I looked after her. Used to call me her salvation. I

found that out at her funeral. I had also played a huge part in

raising my brothers. Scotto is a mini me. Gary was more

rebellious. Whenever I go to see her gravesite that is how I

know we are going to get cured. She told me in the first

dream I had. That I was going to sick and I will be cured

quickly. Now the other one. Our path is set. We can live again.

Plan your future.

Sun, 4 May 2008 21:08:38 -0500

Stronger Than You Think

Sat, 3 May 2008 18:44:17 -0500

Today I spent the day with my best friend Elyssa. Trevor has a new

job. He works at home builders. They have benefits after 3 months

which is good. Today I am having serve brain fog. The past two

nights I was scared. I have been petrified. Very scared. Today I

have been feeling less HD symptoms. Every day I still do aerobics.

Keep this up. We need to build neurons. Keep running. Keep being

active. The longer we are active the better we are. Everyday I go out

with Lucky and Elyssa everyday with Lucky. He meets lots of dog

friends on his walk. Our little boy. When he was at the Hair Salon.

She said he was a smart dog. All of the other dogs from our breeder

where snippy. He was the best of that breeder. We were Lucky. Keep

up your life. Do not surrender your life. Live your life. Keep on living.

Soon as we give up. HD will claim us. It is so important to fight. We

are fighting life and death here. We are. We could lose our life. If

we do not fight. Use that strength. Fight for your right to be happy. To

be hopeful.

Live

Fri, 2 May 2008 17:13:49 -0500

I met with my home support head Nurse today. She seems

nice. I told them that I need time to run this site. I will get it. I

mainly need the med reminder. I usually don’t remember. I

am kind of still a bit scared. I usually am with change. I am

sure I will enjoy the Nurse. Last night I made supper. Yummy.

They start Monday. I accepted I am sick. We will get sicker.

That should not change how we view life. Life is great. Our

future is great. Everything can only get up from here. We can

have real hope know. Real cures. Real breakthroughs. I

believe. There is too much hope for us. Let’s learn to love our

life, ourselves again. Believe in our future. We can get there

easy. It is not far. We can hold on. We can make it in time. We

can learn to live again. A hundred percent healthy. Right now

we have to deal with HD. Until the cure comes. Hold on. We

don’t have long until we are cured. Fight HD with everything

you have. It will be worth it. We can be there. We can live.

Home Support

Thu, 1 May 2008 17:32:46 -0500

Tomorrow we get everything sorted out with home support.

On Monday it starts. Today I am really sick. I am so sick. Last

night there was twitching in my leg for a long time. I have bad

chorea. I love spring. I was taking Lucky for a walk. There was

a little kitty in the road. A huge truck was coming. I ran and

saved that cats life. He might have gone and got ran over.

Poor kitty. I chase him off the road. We need to take

everything with passion for life. Passion to fight. Just not

live. Love your life. Live your life. This is all we have. We need

to have unwavering hope for the future. We will get there. We

can live again a hundred percent. Motivate yourself to

greatness in your eyes. We can do anything we want to. I

never let HD get in the way. Fight HD. Loosen its grip on you.

Loosen it. Breathe again. Live again. Just breathe. Your life is

in your hands. Do what you wish. Live your life now. You have

it back.