Heather Bloggie

Strength

Thu, 5 Jun 2008 10:52:26 -0500

Spent yesterday cleaning with my Nurse Shirley. Made a

yummy slow cooker meal. I won another award today. It is a

Visionary Award. Every one means so much to me. I have two

months of blogs to bring over. It should be done today. I

listen to the HD Prime of life podcast yesterday. I added new

information on HD in the The importance of Testing page.

Also the HD information page. They talked about the study

COHORT. I have been a part of that for 5 years now. I am so

young. My HD is so advanced. I feel I am asset to them. Now I

am the age to do other studies. I tried for years. They needed

someone who was 25. I have been healthy all day yesterday.

I had a night of hallucination terror. I heard someone

breaking in again. I kept seeing things. This morning I

thought I heard Trevor. He was not there. I feeling more

anxious. Let’s loosen HD’s hold on us. Loosen it. We have the

right to live our lives. We have the right to fight our for lives.

We have the right to believe in our lives. These are our lives.

Give them back to us HD. We are fighting for our lives every

day we get up. Believe in our right for hope. Our right for our

future. This is ours to live in the light. Not in the dark. Or

denile. Be strong with me. Fight beside me.

Upset stomach

Wed, 4 Jun 2008 11:24:31 -0500

I have gone through half of my blog. I am so sick today. I have

a bad fever. Upset stomach. Yesterday I was healthy again.

No chorea. We found the volunteer center here. Yesterday

we went for a hike with our Lucky. He loved it. Went for a

drive. I love being outside hiking with Trevor. There is a hiking

club here we might join. They go for hikes every Sunday. I

had the day off of home care. We love going for hikes. I can’t

wait to have my new blog up. Learn to accept HD for what it is.

This is how we live day to day. We live with HD. It is there. We

can’t hide. HD will come and find us. Accept HD. Move on.

Today is the last podcast. I am going to get information for

here from those podcasts. HD will get cured shorty. Accpet

and live until then. Never ever let the hope slide. We know

now that we can have a life. Live with laughter.

More Breakthroughs

Wed, 4 Jun 2008 10:39:21 -0500

Stem Cell Breakthrough

http://www.medicalnewstoday.com/articles/109420.php

Brain Cells and Nerves

http://www.medicalnewstoday.com/articles/108976.php

JHD Information

Tue, 3 Jun 2008 18:32:52 -0500

http://www.patientpower.info/dailydosedetails.asp?dateid=6/2/2008

Number 55

Tue, 3 Jun 2008 17:08:26 -0500

I won Number 55 today. This Aloha Award It is hard to get. They

don't even give out one a year. It is another international award. I

moved over 3 pages of my blog so far.

Moving Day

Tue, 3 Jun 2008 10:35:34 -0500

I am moving my blog over to another blog provider. My page

is staying here. I do not experience problems with it. Just the

blog. It has gone down so many times. It takes me an hour to

fix the errors and blog. I made the new blog. I started moving

every post over. I can’t leave any. The past 3 weeks were

getting worse. That black line was not esthetics at first. That

was error I had to run with to make it look good. I chose the

same blogger as Glen form At Risk blog. Hope it works. I will

post here until I get everything transferred over. I was so

healthy yesterday. I just tripped again. My meds are

working. There is no anger or irrational thinking anymore. I

am stable. I have been having the panic attacks again. We

need more tic tacs. Follow your heart when it comes to HD.

Got a dream? Got a goal. We are thinking of going to the

Queen Charlotte Islands. We were watching a show and

wanted to go worse I always wanted to travel. I have not been

anywhere until I met my Hubby. Never seen the ocean. My

dream. Figure out yours. Motivate yourself. Have fun. Smile.

Anything is possible. Set your goals. Live them out. Have fun.

We deserve to be happy.

Donations

Sat, 31 May 2008 11:20:12 -0500

I now take donations on my site. I have a link that leads to the

Canadian HD Chapter. I need to help us get money around

the HD May Awareness Month. I will be keeping it

permanently. A lot of people wander in here to see my

awards. They have to learn about HD now too. If they want to

donate there is now a way. I am looking in to selling

Amaryllis lily’s. Creston is full of them in all of the flower

shops. People love flowers here. I have never done it before.

This will be my first time. I see them all over the place here. I

know a lot of my good friends would buy some. My landlord’s

have HD in their family too. Yesterday we made a good stir

fry. It was my creation. No recipe or anything. I have a habit

of my arm falling asleep while I sleep. I yelled for Trevor I

was in so much pain. I could not move my arm for ten

minutes. Ouch. Yesterday I was really sick. I have noticed in

the morning I am HD free. Then I get sicker. I keep waking up.

I think I might need sleeping pills. This Serquil gives me

energy. It makes me wake up a lot too. Last night I woke up 4

times. Live your life the way you want to. Never let HD rule

your life. That is yours. That is mine. I will not let HD take

away my dreams and goals. Never give up on yours. It is your

life. Is your life worth fighting for? Yes it is. Everyone of our

lives is worth saving. Never give up on your life. Live. We won’t

have HD for long. Not long and we will be cured.

More Updates

Fri, 30 May 2008 18:02:11 -0500

I updated The Importance Of Testing Page.

Hope Flows

Fri, 30 May 2008 11:42:09 -0500

Next month is HD awareness month. A big month for us. My

meds give me major energy. I was used to be sedated.

Yesterday I was so sick. I was the sickest I have been. Could

hardly walk. Hardly talk. Could not get into my pajamas. I

burnt my hand. I also fell outside hard and skinned my leg.

My Nurses are now worried when I take my baths. They think

that Trevor should be there. I still think I am fine there.

Whenever I go to fall I still catch myself. Just today is the first

fall. We have the grab bars up. So sick,I have been having

trouble eating. I am trying to eat breakfast. Got an upset

tummy. Yesterday I also had an all hallucination day. Last

night I saw a very scary face in the blind. Another scary color-

visual. Very scary. Everything looked so real. I am feeling

healthy this morning. I did yesterday morning too. Got really

sick around 4. My brother Gary is back to work. He works two

days a week. He works at an auction mart. He sells cows and

horses. My Dad has convinced me to look for a volunteer job.

There are hard to get though. I would love to volunteer with

animals. They have an animal shelter here. See if I can find

something. My little Lucky. We are the hottest place in

Canada. The past week. Poor little Lucky. I take the bottle of

water. Shortened his walks. It still gets to him. Love our lives

for what they are for. We have HD. It is a greater reason to

live. A greater reason to hope. A greater life if what we need.

Fight for that. I try everyday to find that. They purpose for

living. We all can find a reason to fight. A reason to live and

accept HD. Until we are cured we have this. We have HD.

Everyone knows. When Gary got sick before Dad got him

tested we knew. Since he was 21. We noticed little changes. I

am glad he is back at work. He feels important by working He

was so depressed. I felt bad because I have this website. He

had nothing. Me, this is my work. I don’t get paid. It is good

work. Everyday I get up sick and give everyone here a glimpse

of hope. Every single day non stop. I even had home care give

me time to do this. I will never give up this site or blog. I will

never let home care slow me down. We all need so much

hope. We need it bad. Having this mission adds so much to

my life too. I still feel bad that I did not get this idea sooner. I

think it had right timing. When I first starting have mental

symptoms. Never lose sight of the cures and treatments for

us.

HD Podcasts

Thu, 29 May 2008 16:29:34 -0500

These are a Bunch of HD Pocasts.

http://www.patientpower.info/listenhealthtopicdetails.asp?showid=HR012308&To