I am unhappy with my home care workers. They are not

respecting me my time table. I told them to come at four. I

had to fit everything. In. They started showing up at 3:30. I

have to take a walk everyday with Elissya and Lucky. The one

day we were there for five minutes then they came. My walks

are down to 15 minutes now. From an hour I am not happy.

How am I supposed to build neurons? Last night I had to wait

until 5:30 to walk him. He pooed in the house. They need to

respect me. I was a former Nurse. I know my patients rights.

We have them. Sadly very few people know that.  I am not

happy. They told me I could still have the walks. They are

taking all of that away. I started my own HD support group.

Every day I will send you blogs and hopeful information

everyday. If you need support. I volunteered at the distress

center. I am trained to fight  anyones personal crisis. I was

planning either this or message board. When I got an

established base. To give back more. Make an impact. For the

past few days I have been healthy. My brother is having

problems with his serquil. It is not working that good now. I

had a hard Mother’s day. I missed my Mom. There were all of

those shows on TV about Mother’s day. This holiday I always

try to avoid. It hurts too much. Especially the divide with

Trevor’s Mom. I made a banner of my support group that

everyone can click. I am doing that through yahoo. Every day I

will email people hope. This never stops. We need hope to

counteract everyone’s negative message.  We will live HD

free soon. I will keep out all of the trolls is what they call

them. People that have nothing nice to say. I  had that happen

to me. I will not let them in. Be free with your feelings. Will be

free with my hope. We can get cured. We have hope. I can

give you this everyday now. HD means we have to live more.

We ne more hope. We need to counteract all the matter of

fact information. They don’t leave room for hope. I do. I give