Open Community
Post to this Blog
« May 2008 »
S M T W T F S
1 2 3
4 5 6 7 8 9 10
11 12 13 14 15 16 17
18 19 20 21 22 23 24
25 26 27 28 29 30 31


 
 
Heather Bloggie
Tuesday, 13 May 2008
Hope
Mood:  cheeky
Topic: Huntington's Disease

I am feeling really sick today. My HD is so bad. I am

completely out of it. Having g total brain fog. My home

support situation is worked out. They will come at 100 in the

morning and 4 to 5 pm. I am happy. They will come at 10 to do

slow cooker meals with me. I am, felling more capable. Every

night I make a meal. With a little help. I thought they would

steal my independence. They are making me more

independent. I had an occupational therapist come over. She

is getting us grab bars for the bathroom. We are going to

work all of that out. They are all going to have a conference.

All of my Doctors and my family. They are coming out with

plans for my care. We signed up for pahamrphamicare here.

They are making us pay 1000 dollars of meds before I get

covered for 75 percent. That is horrible. How can we come out

with that? My Dad sent us 500 hundred dollars for my meds. I

have not many left and we can't afford too. We just need to

believe that things will get better. They can only improve.

That is what we need to go us through, pure faith and belief.

We will have our day of sunshine when we get cured. All of

this will be worth it. Don’t ever lose hope in the things that

keep us alive. The things that get us going. There are many

reasons of why we need to survive. We will get cured shortly.

Why not live your life knowing that. We have a future. We can

get there. We just can never lose hope. That is all we need is

hope. We will get that day soon. The day were all of them

pain and worry go away. We will get there. It will come soon.

We will get cured. We have a future. Plan it out. Plan our

future. We can have that day of glory. It will come sooner

than later.

Posted by heatherdugdale at 6:05 PM EDT
Updated: Tuesday, 13 May 2008 6:07 PM EDT
Post Comment | Permalink | Share This Post

View Latest Entries