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Heather Bloggie
Wednesday, 14 May 2008
Hopr Builds
Mood:  celebratory
Topic: Huntington's Disease

We are going to get meds. Trevor asked for his check early

form his Dad. We were debating divorce. If we did it we would

have money. We could still be together. They expect Trevor to

take care of us. Insane it is. Trevor has a new job. He will get

benefits in three months. In those three months we are

going to have to pay hundreds of dollars worth of meds.

Today feel a lot healthier. I have a clear mind. Shirley came

over. We started our slow cooker meal. I am not surprised

that Gary does not have his meds working. The Serquil works

for a while. The it gets worse. I am still grieving over Jenny. I

saw some school busses here. I saw the bus I saw on the

news. I still need Trevor to hook up the scanner. He is busy

working two jobs to afford everything. He also does part time

for his Dad. We are fighting HD together.  Let’s take the pain

and put that away. We can live without the pain of HD. We can

learn to live without it. HD is fighting against us. It is fight and

we are fighting. Our life is on the line every day. Never give up

 fighting. Never stop fighting. Never stop. HD can win. We

cannot let it take our life away. Take away our meaning of

our life. There are so many reasons to fight. We need to live

with HD. We need to live period. We need meaning. A reason

to live. Live and live your life. Accept HD. Accept that we are

getting sicker. We are going to get cured shortly, until that

we are sick. Own HD. Own your life living with HD.

Posted by heatherdugdale at 2:46 PM EDT
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